American Academy of Family Physicians

American Academy of HIV Medicine

American Academy of Pediatrics

Analgesic, Anesthetic, and Addiction Clinical Trial Translations Innovations Opportunities and Networks (ACTTION) American Pain Society Pain Taxonomy

Patient Protection and Affordable Care Act

American College of Emergency Physicians

Accreditation Council for Graduate Medical Education

accountable care organization

American College of Obstetricians and Gynecologists

American College of Physicians

acute chest syndrome

Agency for Healthcare Research and Quality

Association of Public Health Laboratories

Adult Sickle Cell Quality of Life Measurement Information System

American Society of Hematology

American Society of Pediatric Hematology/Oncology

Beck Depression Inventory

Consumer Assessment of Healthcare Providers and Systems

complementary and alternative medicine

community-based organization

cognitive behavioral therapy

consultative- or co-management-centered

Chronic Care Model

Community Care of North Carolina

Centers for Disease Control and Prevention

clinical decision unit

cystic fibrosis

cystic fibrosis carrier

Cystic Fibrosis Foundation

community health worker

Center for Inherited Blood Disorders

California Institute for Regenerative Medicine

chronic kidney disease

children with medical complexity

Center for Medicare & Medicaid Innovation

Centers for Medicare & Medicaid Services

comprehensive primary care plus

Clinical Research Training Institute

central sensitization

children with special health care needs

chorionic villus sampling

disability-adjusted life-year

deep vein thrombosis

episode-based

Extension for Community Healthcare Outcomes

emergency department

Emergency Department of SCD Care Coalition

exertional heat illness

electronic health record

Early Periodic Screening, Diagnosis and Treatment

U.S. Food and Drug Administration

Global Blood Therapeutics

gastroesophageal reflux disease

Grading of Recommendations Assessment, Development and Evaluation

graft-versus-host-disease

hepatitis C virus

Hemophilia Federation of America

U.S. Department of Health and Human Services

Health Insurance Portability and Accountability Act

human leukocyte antigen

Hematology–Oncology Psycho-Educational Needs Assessment

high-performance liquid chromatography

health professional shortage area

health-related quality of life

Health Resources and Services Administration

Health Services Administration

hematopoietic stem cell transplantation

hemophilia treatment center

hydroxyurea

Hemoglobinopathy Uniform Medical Language Ontology

International Classification of Diseases

Institute for Clinical and Economic Review

Individuals with Disabilities Education Act

isoelectric focusing

Improving Health Outcomes and Medical Education for Sickle Cell Disease

Institute of Medicine

intelligence quotient

intrauterine growth restriction

in vitro fertilization

Johns Hopkins Hospital

Jefferson University Hospitals

Kaiser Permanente Mid-Atlantic States

loan repayment program

lentiviral vector

Medical and Scientific Advisory Council

Maternal and Child Health Bureau

magnetic resonance imaging

Multicenter Study of Hydroxyurea

newborn screening

National Collegiate Athletic Association

National Hemophilia Foundation

National Heart, Lung, and Blood Institute

National Health Service Corps

National Institute for Health and Care Excellence

National Institute for Children’s Health Quality

National Institutes of Health

nitric oxide

National Organization for Rare Diseases

National Quality Forum

non-steroidal anti-inflammatory drug

Office of the Assistant Secretary for Health

opioid-induced hyperalgesia

opioid use disorder

opioid withdrawal syndrome

Pennsylvania Sickle Cell Provider’s Network

performance-based risk-sharing

primary care-centered

patient-centered medical home

Patient-Centered Outcomes Research Institute

primary care provider

pneumococcal conjugate vaccine

pre-implantation genetic diagnosis

Pain in Sickle Cell Epidemiology Study

Pediatric Measure Application Partnership

pneumococcal polysaccharide vaccine

posterior reversible encephalopathy syndrome

Program to Increase Diversity Among Individuals Engaged in Health-Related Research

patient-reported outcome

posttraumatic stress disorder

quality-adjusted life-year

quality improvement

quality of life

red blood cell

Research Collaborative

rapid eye movement

reactive oxygen species

Registry and Surveillance System for Hemoglobinopathies

sickle cell anemia

Sickle Cell Community Consortium

sickle cell disease

Sickle Cell Disease Association of America

Sickle Cell Disease Association of America, Michigan Chapter, Inc.

Sickle Cell Disease Association of Illinois

Sickle Cell Data Collection

Sickle Cell Disease Foundation of California

Sickle Cell Disease Treatment Demonstration Regional Collaborative Program

Sickle Cell Foundation of Georgia

silent cerebral infarct

sickle cell trait

shared decision making

Social Security Administration

Social Security Disability Insurance

Supplemental Security Income

Solutions to Empower Patients

substance use disorder

transcranial Doppler

tricuspid regurgitant velocity

U.S. Preventive Services Task Force

vaso-occlusive crisis

vaso-occlusive episode

venous thromboembolism

World Bleeding Disorders Registry

World Federation of Hemophilia