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National Academies of Sciences, Engineering, and Medicine; Health and Medicine Division; Board on Population Health and Public Health Practice; Committee on Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action; Martinez RM, Osei-Anto HA, McCormick M, editors. Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action. Washington (DC): National Academies Press (US); 2020 Sep 10.

Cover of Addressing Sickle Cell Disease

Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action.

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Appendix HHealth Resources and Services Administration Sickle Cell Disease Programs

OVERVIEW OF SICKLE CELL DISEASE PROGRAMS

Sickle Cell Disease Treatment Demonstration Program (SCDTDP): Improve the health outcomes of individuals with sickle cell disease (SCD), reduce morbidity and mortality caused by SCD, reduce the number of individuals with SCD receiving care only in emergency departments, and improve the quality of coordinated and comprehensive services to individuals with SCD and their families.

Sickle Cell Disease Newborn Screening Follow-Up Program: To ensure that individuals diagnosed with SCD through newborn screening receive appropriate follow-up services including counseling, education, access to a medical home, and other support services.

A map of the United States showing the regions of the HRSA SCD Treatment Demonstration program and the SCD Newborn Screening community-based programs.

FIGURE H-1

HRSA Sickle Cell Treatment Demonstration Program and Sickle Cell Disease Newborn Screening Follow-Up Program. NOTE: CBO = community-based organization; SCDNBSP = Sickle Cell Disease Newborn Screening Follow-Up Program; SCDTDP = Sickle Cell Disease Treatment (more...)

TABLE H-1. Programs at a Glance.

TABLE H-1

Programs at a Glance.

Copyright 2020 by the National Academy of Sciences. All rights reserved.
Bookshelf ID: NBK566478

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