The authors thank all the professionals, parents and children who participated in research interviews or FGs or completed research questionnaires, the children and parents who formed our PPI reference group and others who provided feedback informally and all the staff from the voluntary agencies and professional bodies who helped disseminate our WTP questionnaire through their professional and parental networks.
The authors thank the anonymised principal investigators at two case study sites.
The authors thank Ms Helen Cockerill, Ms Jane Shaw, Dr Brindha Dhandapani, Dr Susan Protheroe, Dr Karen Horridge, Dr Mark Whiting, Dr Eilis Kennedy and Mr Habib Aziz as members of the G-PATH (gastrostomy feeding and psychosocial support pathways) Project Advisory Group.
The authors thank Dr Megan Smith (Research Fellow, University of Hertfordshire), who assisted with the design, collection and preliminary analysis of the data for the WTP study (phase 3), and Mr Nigel Smeeton (Statistician) for statistical advice and the analysis of the WTP study.
The authors thank Dr Judith Lathlean (Independent Consultant), who assisted with the analysis of the qualitative data.
Contributions of authors
Gillian M Craig (https://orcid.org/0000-0001-5132-7378) (Reader, Public Health, Social Science) contributed to writing the protocol, undertook the analysis of the qualitative case study data and associated write-up, analysed the national survey data, wrote the first draft of the report, critically reviewed the manuscript and agreed the final version.
Eva Brown Hajdukova (https://orcid.org/0000-0001-6127-7001) (Research Fellow) undertook the analysis of the qualitative case study data and associated write-up, critically reviewed the manuscript and agreed the final version.
Celia Harding (https://orcid.org/0000-0002-5192-2027) (Senior Lecturer, Speech and Language Therapy) contributed to writing the protocol and other sections of the report, commented on revised drafts, critically reviewed the manuscript and agreed the final version.
Chris Flood (https://orcid.org/0000-0001-5170-7792) (Senior Lecturer, mental health and health economics) contributed to writing the protocol, the costings and resource use analysis and write-up, critically reviewed the manuscript and agreed the final version.
Christine McCourt (https://orcid.org/0000-0003-4765-5795) (Professor, Maternal and Child Health, Case Study Research) contributed to writing the protocol and other sections of the report, commented on revised drafts, critically reviewed the manuscript and agreed the final version.
Diane Sellers (https://orcid.org/0000-0002-3090-2107) (Speech and Language Therapy) contributed to the writing of sections of the report, commented on revised drafts, critically reviewed the manuscript and agreed the final version.
Joy Townsend (https://orcid.org/0000-0002-7912-9856) (Emeritus Professor, Health Economics) contributed to writing the protocol and the costings and resource use analysis and write-up, critically reviewed the manuscript and agreed the final version.
Dawn Moss (https://orcid.org/0000-0001-7013-0925) (Consultant Nurse Specialist) contributed to the writing of sections of the report, commented on revised drafts, critically reviewed the manuscript and agreed the final version.
Catherine Tuffrey (https://orcid.org/0000-0002-6308-1173) (Consultant Paediatrician) contributed to the writing of sections of the report, commented on revised drafts, critically reviewed the manuscript and agreed the final version.
Bryony Donaldson (https://orcid.org/0000-0001-6256-028X) (Dietitian) contributed to the writing of sections of the report, commented on revised drafts, critically reviewed the manuscript and agreed the final version.
Maxime Cole (https://orcid.org/0000-0002-8633-9149) (Co-director, Triangle; PPI) undertook PPI with parents and young people, contributed to the writing of sections of the report, commented on revised drafts, critically reviewed the manuscript and agreed the final version.
Anna Gill (Lay Chairperson of PAG; PPI) contributed to the writing of sections of the report, commented on revised drafts, critically reviewed the manuscript and agreed the final version.
Data-sharing statement
All data requests should be submitted to the corresponding author for consideration. Access to available anonymised data may be granted following review.
Disclaimers
This report presents independent research funded by the National Institute for Health Research (NIHR). The views and opinions expressed by authors in this publication are those of the authors and do not necessarily reflect those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health and Social Care. If there are verbatim quotations included in this publication the views and opinions expressed by the interviewees are those of the interviewees and do not necessarily reflect those of the authors, those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health and Social Care.
