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Exudative vitreoretinopathy 1(EVR1)

MedGen UID:
343561
Concept ID:
C1851402
Disease or Syndrome
Synonyms: Criswick-Schepens syndrome; EVR1; Familial exudative vitreoretinopathy, autosomal dominant; FEVR, AUTOSOMAL DOMINANT; FZD4-Related Familial Exudative Vitreoretinopathy, Autosomal Dominant
 
Genes (locations): FZD4 (11q14.2); LRP5 (11q13.2)
 
Monarch Initiative: MONDO:0007589
OMIM®: 133780

Definition

Familial exudative vitreoretinopathy (FEVR) is an inherited disorder characterized by the incomplete development of the retinal vasculature. Its clinical appearance varies considerably, even within families, with severely affected patients often registered as blind during infancy, whereas mildly affected patients with few or no visual problems may have such a small area of avascularity in their peripheral retina that it is visible only by fluorescein angiography. It is believed that this peripheral avascularity is the primary anomaly in FEVR and results from defective retinal angiogenesis. The sight-threatening features of the FEVR phenotype are considered secondary to retinal avascularity and develop because of the resulting retinal ischemia; they include the development of hyperpermeable blood vessels, neovascularization, vitreoretinal traction, retinal folds, and retinal detachments (summary by Poulter et al., 2010). In 31 Chinese pedigrees clinically diagnosed with FEVR, Rao et al. (2017) analyzed 6 FEVR-associated genes and identified mutations in 12 of the probands, including 5 (16.1%) in LRP5, 3 (9.7%) in NDP, 2 (6.5%) in FZD4, and 1 (3.2%) in TSPAN12. In addition, a mutation in the KIF11 gene (148760) was identified in a patient who also exhibited microcephaly (MCLMR; 152950). The authors noted that their detection rate did not exceed 50%, suggesting that other FEVR-associated genes remained to be discovered. Genetic Heterogeneity of Familial Exudative Vitreoretinopathy Also see EVR2 (305390), caused by mutation in the NDP gene (300658) on chromosome Xp11; EVR3 (605750), mapped to 11p13-p12; EVR4 (601813), caused by mutations in the LRP5 gene (603506) on 11q13.4; EVR5 (613310), caused by mutation in the TSPAN12 gene (613138) on 7q31; EVR6 (616468), caused by mutation in the ZNF408 gene (616454) on 11p11; and EVR7 (617572), caused by mutation in the CTNNB1 gene (116806) on chromosome 3p22. [from OMIM]

Additional description

From MedlinePlus Genetics
The signs and symptoms of familial exudative vitreoretinopathy vary widely, even within the same family. In many affected individuals, the retinal abnormalities never cause any vision problems. Other people with this condition develop abnormal vessels that leak. This  causes chronic inflammation which, over time, can lead to fluid under the retina (exudate). A reduction in the retina's blood supply causes the retina to fold, tear, or separate from the back of the eye (retinal detachment). The resulting retinal damage can lead to vision loss and blindness. Other eye abnormalities are also possible, including eyes that do not look in the same direction (strabismus) and a visible whiteness (leukocoria) in the normally black pupil.

Some people with familial exudative vitreoretinopathy also have a condition known as osteoporosis-pseudoglioma syndrome, which is characterized by reduced bone density. People with this condition have weakened bones and an increased risk of fractures.

Familial exudative vitreoretinopathy is a hereditary disorder that can cause vision loss that worsens over time. This condition affects the retina, the specialized light-sensitive tissue that lines the back of the eye. In people with this disorder, blood vessels do not fully develop at the outer edges (periphery) of the retina, which reduces the blood supply to this tissue. This prolonged reduction in blood supply (chronic ischemia) causes continued damage to the retina and can lead to worsening of the condition.   https://medlineplus.gov/genetics/condition/familial-exudative-vitreoretinopathy

Clinical features

From HPO
Recurrent fractures
MedGen UID:
42094
Concept ID:
C0016655
Injury or Poisoning
The repeated occurrence of bone fractures (implying an abnormally increased tendency for fracture).
Esotropia
MedGen UID:
4550
Concept ID:
C0014877
Disease or Syndrome
A form of strabismus with one or both eyes turned inward ('crossed') to a relatively severe degree, usually defined as 10 diopters or more.
Vitreous floaters
MedGen UID:
5217
Concept ID:
C0016242
Finding
Deposits of various size, shape, consistency, refractive index, and motility within the eye's vitreous humor, which is normally transparent.
Retinal detachment
MedGen UID:
19759
Concept ID:
C0035305
Disease or Syndrome
Primary or spontaneous detachment of the retina occurs due to underlying ocular disease and often involves the vitreous as well as the retina. The precipitating event is formation of a retinal tear or hole, which permits fluid to accumulate under the sensory layers of the retina and creates an intraretinal cleavage that destroys the neurosensory process of visual reception. Vitreoretinal degeneration and tear formation are painless phenomena, and in most cases, significant vitreoretinal pathology is found only after detachment of the retina starts to cause loss of vision or visual field. Without surgical intervention, retinal detachment will almost inevitably lead to total blindness (summary by McNiel and McPherson, 1971).
Retinal neovascularization
MedGen UID:
20550
Concept ID:
C0035320
Pathologic Function
In wound repair, neovascularization (NV) involves the sprouting of new vessels from pre-existent vessels to repair or replace damaged vessels. In the retina, NV is a response to ischemia. The NV adheres to the inner surface of the retina and outer surface of the vitreous. NV are deficient in tight junctions and hence leak plasma into surrounding tissue including the vitreous. Plasma causes the vitreous gel to degenerate, contract, and eventually collapse which pulls on the retina. Since retinal NV is adherent to both retina and vitreous, as the vitreous contracts the NV may be sheared resulting in vitreous hemorrhage or the NV may remain intact and pull the retina with the vitreous resulting in retinal elevation referred to as traction retinal detachment.
Vitreous hemorrhage
MedGen UID:
12119
Concept ID:
C0042909
Pathologic Function
Bleeding within the vitreous compartment of the eye.
Reduced visual acuity
MedGen UID:
65889
Concept ID:
C0234632
Finding
Diminished clarity of vision.
Subcapsular cataract
MedGen UID:
65903
Concept ID:
C0235259
Finding
A cataract that affects the region of the lens directly beneath the capsule of the lens.
Retinal exudate
MedGen UID:
116111
Concept ID:
C0240897
Finding
Fluid which has escaped from retinal blood vessels with a high concentration of lipid, protein, and cellular debris with a typically bright, reflective, white or cream colored appearance on the surface of the retina.
Falciform retinal fold
MedGen UID:
488857
Concept ID:
C0344550
Congenital Abnormality
An area of the retina that is buckled so that a sector-shaped sheet of retina lies in front of the normal retina. This feature is of congenital onset.
Posterior vitreous detachment
MedGen UID:
140839
Concept ID:
C0423361
Disease or Syndrome
Separation of the vitreous humor from the retina.
Blindness
MedGen UID:
99138
Concept ID:
C0456909
Disease or Syndrome
Blindness is the condition of lacking visual perception defined as a profound reduction in visual perception. On the 6m visual acuity scale, blindness is defined as less than 3/60. On the 20ft visual acuity scale, blindness is defined as less than 20/400. On the decimal visual acuity scale, blindness is defined as less than 0.05. Blindness is typically characterized by a visual field of no greater than 10 degrees in radius around central fixation.
Peripheral retinal avascularization
MedGen UID:
338687
Concept ID:
C1851406
Finding
Exudative vitreoretinopathy
MedGen UID:
892913
Concept ID:
C4072980
Disease or Syndrome
Ectopic fovea
MedGen UID:
927614
Concept ID:
C4293705
Anatomical Abnormality
An abnormal anatomic position of the fovea, the small, central pit composed of closely packed cones that is located in the macula of the retina.
Retinal hole
MedGen UID:
1642357
Concept ID:
C4551442
Disease or Syndrome
A small break in the retina.

Term Hierarchy

CClinical test,  RResearch test,  OOMIM,  GGeneReviews,  VClinVar  
  • CROGVExudative vitreoretinopathy 1

Professional guidelines

PubMed

Chen SN, Hwang JF, Lin CJ
Retina 2012 Feb;32(2):220-5. doi: 10.1097/IAE.0b013e31821c3ec5. PMID: 22277905

Recent clinical studies

Etiology

Zhang DL, Blair MP, Zeid JL, Basith SST, Shapiro MJ
Ophthalmic Genet 2019 Oct;40(5):449-452. doi: 10.1080/13816810.2019.1660380. PMID: 31755341
Kang KB, Wessel MM, Tong J, D'Amico DJ, Chan RV
J Pediatr Ophthalmol Strabismus 2013 Sep-Oct;50(5):282-8. Epub 2013 Jun 4 doi: 10.3928/01913913-20130528-04. PMID: 23739460
Chen SN, Hwang JF, Lin CJ
Retina 2012 Feb;32(2):220-5. doi: 10.1097/IAE.0b013e31821c3ec5. PMID: 22277905

Diagnosis

Zhang DL, Blair MP, Zeid JL, Basith SST, Shapiro MJ
Ophthalmic Genet 2019 Oct;40(5):449-452. doi: 10.1080/13816810.2019.1660380. PMID: 31755341
Garcia MD, Ventura CV, Berrocal AM
J Pediatr Ophthalmol Strabismus 2017 Nov 17;54:e71-e74. doi: 10.3928/01913913-20170907-03. PMID: 29156058
Campos-Obando N, Oei L, Hoefsloot LH, Kiewiet RM, Klaver CC, Simon ME, Zillikens MC
J Clin Endocrinol Metab 2014 Apr;99(4):1107-11. Epub 2014 Jan 13 doi: 10.1210/jc.2013-3238. PMID: 24423337
Kang KB, Wessel MM, Tong J, D'Amico DJ, Chan RV
J Pediatr Ophthalmol Strabismus 2013 Sep-Oct;50(5):282-8. Epub 2013 Jun 4 doi: 10.3928/01913913-20130528-04. PMID: 23739460

Prognosis

Zhang DL, Blair MP, Zeid JL, Basith SST, Shapiro MJ
Ophthalmic Genet 2019 Oct;40(5):449-452. doi: 10.1080/13816810.2019.1660380. PMID: 31755341
Hinds AM, Rosser E, Reddy MA
Ophthalmic Genet 2018 Jun;39(3):396-398. Epub 2018 Apr 4 doi: 10.1080/13816810.2018.1443342. PMID: 29617172

Clinical prediction guides

Campos-Obando N, Oei L, Hoefsloot LH, Kiewiet RM, Klaver CC, Simon ME, Zillikens MC
J Clin Endocrinol Metab 2014 Apr;99(4):1107-11. Epub 2014 Jan 13 doi: 10.1210/jc.2013-3238. PMID: 24423337

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