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Methemoglobinemia type 4(METAG)

MedGen UID:
925090
Concept ID:
C4285231
Disease or Syndrome
Synonym: METHEMOGLOBINEMIA DUE TO DEFICIENCY OF CYTOCHROME b5
 
Gene (location): CYB5A (18q22.3)
 
Monarch Initiative: MONDO:0009605
OMIM®: 250790

Definition

Methemoglobinemia and ambiguous genitalia (METAG) is due to isolated 17,20-lyase deficiency, defined by apparently normal 17-alpha-hydroxylase activity but severely reduced 17,20-lyase activity of the CYP17A1 enzyme (609300), which results in sex steroid deficiency but normal glucocorticoid and mineralocorticoid reserve. The clinical phenotype is characterized by male undermasculinization, with absent or disturbed pubertal development in both 46,XY and 46,XX individuals. Mild to severe methemoglobinemia has been reported in these patients (Idkowiak et al., 2012). Other autosomal recessive methemoglobinemias include types I and II (see 250800), caused by mutation in the CYB5R3 gene (613213). Isolated 17,20-lyase deficiency can also be caused by mutation in the CYP17A1 gene (609300), and mutation in the POR gene can manifest clinically as isolated 17,20-lyase deficiency (see 124015.0016). [from OMIM]

Clinical features

From HPO
Male pseudohermaphroditism
MedGen UID:
68666
Concept ID:
C0238395
Congenital Abnormality
Hermaphroditism refers to a discrepancy between the morphology of the gonads and that of the external genitalia. In male pseudohermaphroditism, the genotype is male (XY) and the external genitalia are imcompletely virilized, ambiguous, or complete female. If gonads are present, they are testes.
Ambiguous genitalia
MedGen UID:
78596
Concept ID:
C0266362
Congenital Abnormality
A genital phenotype that is not clearly assignable to a single gender. Ambiguous genitalia can be evaluated using the Prader scale
Bifid scrotum
MedGen UID:
90968
Concept ID:
C0341787
Congenital Abnormality
Midline indentation or cleft of the scrotum.
Hypospadias
MedGen UID:
163083
Concept ID:
C0848558
Congenital Abnormality
Abnormal position of urethral meatus on the ventral penile shaft (underside) characterized by displacement of the urethral meatus from the tip of the glans penis to the ventral surface of the penis, scrotum, or perineum.
Scrotal hypospadias
MedGen UID:
786371
Concept ID:
C2197691
Finding
Hypospadias with location of the urethral meatus in the scrotum.
Micropenis
MedGen UID:
1633603
Concept ID:
C4551492
Congenital Abnormality
Abnormally small penis. At birth, the normal penis is about 3 cm (stretched length from pubic tubercle to tip of penis) with micropenis less than 2.0-2.5 cm.
Methemoglobinemia
MedGen UID:
6339
Concept ID:
C0025637
Disease or Syndrome
Abnormally increased levels of methemoglobin in the blood. In this form of hemoglobin, there is an oxidized ferric iron (Fe +3) rather than the reduced ferrous form (Fe 2+) that is normally found in hemoglobin. Methemoglobin has a reduced affinity for oxygen, resulting in a reduced ability to release oxygen to tissues.
Cyanosis
MedGen UID:
1189
Concept ID:
C0010520
Sign or Symptom
Bluish discoloration of the skin and mucosa due to poor circulation or inadequate oxygenation of arterial or capillary blood.
Elevated circulating luteinizing hormone level
MedGen UID:
868698
Concept ID:
C4023101
Finding
An elevated concentration of luteinizing hormone in the blood.
Decreased circulating dehydroepiandrosterone-sulfate concentration
MedGen UID:
1622736
Concept ID:
C4531271
Finding
A reduced concentration of dehydroepiandrosterone-sulfate in the blood.

Professional guidelines

PubMed

Basavaraj GS, Gupta RD, Patel B, Jebasingh F, George AA, Peter D, George L, Paul TV, Thomas N
Indian J Dermatol Venereol Leprol 2022 May-Jun;88(4):519-522. doi: 10.25259/IJDVL_527_18. PMID: 33871212
Russell SC, Doyle E
Drug Saf 1997 Apr;16(4):279-87. doi: 10.2165/00002018-199716040-00005. PMID: 9113495
Hall AH, Kulig KW, Rumack BH
Med Toxicol 1986 Jul-Aug;1(4):253-60. doi: 10.1007/BF03259842. PMID: 3537620

Recent clinical studies

Etiology

Deorukhkar A, Kulkarni A, Kedar P
Mol Biol Rep 2022 Mar;49(3):2141-2147. Epub 2022 Jan 22 doi: 10.1007/s11033-021-07031-3. PMID: 35064402
Basavaraj GS, Gupta RD, Patel B, Jebasingh F, George AA, Peter D, George L, Paul TV, Thomas N
Indian J Dermatol Venereol Leprol 2022 May-Jun;88(4):519-522. doi: 10.25259/IJDVL_527_18. PMID: 33871212
Burtseva TE, Ammosova TN, Protopopova NN, Yakovleva SY, Slobodchikova MP
J Pediatr Hematol Oncol 2017 Jan;39(1):42-45. doi: 10.1097/MPH.0000000000000705. PMID: 27879543
Naguib M, Magboul MM, Samarkandi AH, Attia M
Drug Saf 1998 Apr;18(4):221-50. doi: 10.2165/00002018-199818040-00001. PMID: 9565736
Russell SC, Doyle E
Drug Saf 1997 Apr;16(4):279-87. doi: 10.2165/00002018-199716040-00005. PMID: 9113495

Diagnosis

Deorukhkar A, Kulkarni A, Kedar P
Mol Biol Rep 2022 Mar;49(3):2141-2147. Epub 2022 Jan 22 doi: 10.1007/s11033-021-07031-3. PMID: 35064402
Gupta V, Kulkarni A, Warang P, Devendra R, Chiddarwar A, Kedar P
Hum Mutat 2020 Apr;41(4):737-748. Epub 2020 Jan 30 doi: 10.1002/humu.23973. PMID: 31898843
Chaurasia S, Ramappa M, Bhargava A
Cornea 2014 Apr;33(4):422-4. doi: 10.1097/ICO.0000000000000076. PMID: 24503601
Hall AH, Kulig KW, Rumack BH
Med Toxicol 1986 Jul-Aug;1(4):253-60. doi: 10.1007/BF03259842. PMID: 3537620
Jaffé ER
Haematologia (Budap) 1982 Dec;15(4):389-99. PMID: 6764628

Therapy

Basavaraj GS, Gupta RD, Patel B, Jebasingh F, George AA, Peter D, George L, Paul TV, Thomas N
Indian J Dermatol Venereol Leprol 2022 May-Jun;88(4):519-522. doi: 10.25259/IJDVL_527_18. PMID: 33871212
Naguib M, Magboul MM, Samarkandi AH, Attia M
Drug Saf 1998 Apr;18(4):221-50. doi: 10.2165/00002018-199818040-00001. PMID: 9565736
Russell SC, Doyle E
Drug Saf 1997 Apr;16(4):279-87. doi: 10.2165/00002018-199716040-00005. PMID: 9113495
Hall AH, Kulig KW, Rumack BH
Med Toxicol 1986 Jul-Aug;1(4):253-60. doi: 10.1007/BF03259842. PMID: 3537620
Strother A, Fraser IM, Allahyari R, Tilton BE
Bull World Health Organ 1981;59(3):413-25. PMID: 6976849Free PMC Article

Prognosis

Percy MJ, Oren H, Savage G, Irken G
Hematol J 2004;5(4):367-70. doi: 10.1038/sj.thj.6200380. PMID: 15297856
Dekker J, Eppink MH, van Zwieten R, de Rijk T, Remacha AF, Law LK, Li AM, Cheung KL, van Berkel WJ, Roos D
Blood 2001 Feb 15;97(4):1106-14. doi: 10.1182/blood.v97.4.1106. PMID: 11159544
Jenkins MM, Prchal JT
Blood 1996 Apr 1;87(7):2993-9. PMID: 8639921

Clinical prediction guides

Chaurasia S, Ramappa M, Bhargava A
Cornea 2014 Apr;33(4):422-4. doi: 10.1097/ICO.0000000000000076. PMID: 24503601
Dekker J, Eppink MH, van Zwieten R, de Rijk T, Remacha AF, Law LK, Li AM, Cheung KL, van Berkel WJ, Roos D
Blood 2001 Feb 15;97(4):1106-14. doi: 10.1182/blood.v97.4.1106. PMID: 11159544
Higasa K, Manabe JI, Yubisui T, Sumimoto H, Pung-Amritt P, Tanphaichitr VS, Fukumaki Y
Br J Haematol 1998 Dec;103(4):922-30. doi: 10.1046/j.1365-2141.1998.01123.x. PMID: 9886302
Jenkins MM, Prchal JT
Blood 1996 Apr 1;87(7):2993-9. PMID: 8639921
Strother A, Fraser IM, Allahyari R, Tilton BE
Bull World Health Organ 1981;59(3):413-25. PMID: 6976849Free PMC Article

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