Table 7. [Recommended Surveillance for Individuals with...]. - GeneReviews®

System/Concern	Evaluation	Frequency
Neurologic	Monitor those w/seizures as clinically indicated. Assess for new manifestations such as new seizure types, changes in tone, & movement disorders.	At each visit
Development	Monitor developmental progress & educational needs.	If applicable
Eval by developmental pediatrician or developmental specialist	Annually &/or as needed
Psychiatric	Eval by psychiatrist for any psychiatric comorbidities	If applicable
Family/Community	Assess family need for social work support (e.g., palliative/respite care, other local resources), care coordination, or follow-up genetic counseling if new questions arise (e.g., family planning).	At each visit

From: Autosomal Dominant Sleep-Related Hypermotor (Hyperkinetic) Epilepsy

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Adam MP, Feldman J, Mirzaa GM, et al., editors.

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